What I wish people understood

-There is nothing I am doing (or not doing) to cause my migraines
-I cannot just take medicine to make everything better- at least not with my current medications. My preventative clearly isn’t working, and my abortive works about half the time. Alleve helps, but I’m not supposed to take it.
-Every time I make plans to do something, I always make a tentative plan. I should be more explicit about that, but it’s because I can’t predict how I’m going feel on any given day or at any given time.
-I never know how I’m going to feel when I wake up in the morning- and that sets the mood/expectations for the entire day.
-I have received a lot of contradictory advice from my doctors. I’m trying to educate myself so I can form my own opinions.
-I do not have episodic migraines/headaches. I have pain almost every day (12 out of the last 14 days). My pain is chronic, and I wouldn’t use that term lightly.
-I don’t want sympathy. I just want people to know that I understand my body and my pain better than they ever could.


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